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These interventions may occur with pets, therapy animals, or service animals.

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Researchers determined pet ownership decreases depression and improves social adjustment, fitness, and weight status in children 17 , 19 - Animal-assisted interventions may benefit many special populations, especially children with life-threatening conditions. As children and their parents navigate the challenging journey of dealing with life-threatening conditions, one potential strategy to decrease suffering of children with advanced disease is the use of animal-assisted interventions. The need for innovative, compassionate care that enhances quality of life for children and their families is a continuous concern as life-threatening conditions affect families in profound ways.

They must cope with numerous physical concerns, as well as behavioral and psychosocial issues such as depression, anxiety, loneliness and relational strain.

Resources for Paediatric Palliative Care - The Malaysian Paediatric Association

In the current healthcare environment, concerns about cost-containment and access to care are prevalent. Animal-assisted interventions with registered canines can be provided as a volunteer service, resulting in low cost and numerous benefits. According to children and their parents, time with a dog during clinic visits or hospitalization has resulted in I increased compliance and a willingness to actively participate in treatment; II distraction from pain and concerns about treatment outcomes; III decreased anxiety and perceptions of stress; IV unconditional acceptance; and V improved interactions with the healthcare team 16 , 17 , 22 , These benefits differ for children of different ages, genders, development, and progression in their illness trajectory.

Through normalizing a complex and sometimes daunting environment, canines may play a key role through the human-animal bond, their unconditional love thereby enhancing child and family well-being. Startling data reveal that in , 4. Prematurity was the largest single cause of death. In various cultures in different parts of the globe, care must be taken to ensure knowledge and understanding of basic tenets and traditions surrounding life-threatening conditions and end-of-life EOL care.

Even within the same country, diverse ethnic groups with a variety of values, principles and beliefs coexist, and it is incumbent on nurses and other healthcare providers to explore and honor those differences.

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A seminal international study focusing on communication challenges when families are faced with having a child who is terminally ill was completed in Sweden 24 , and findings may be useful to various cultures. All parents who experienced the death of their child between and were asked to complete a questionnaire, focusing on whether or not they talked about death with their child. Out of parents who responded, none of the who talked with their child about death regretted it, while 69 of the parents who did not talk with their child about death regretted not doing so. Even though the study was completed well over a decade ago, its applicability may still resonate today in pediatric palliative care.

Siblings and parents described major categories of change in their personal lives e. Changes in priorities was more likely to be reported by parents and sadness was more likely to be reported by siblings. Sixty-one percent reported non-purposeful bonds like dreams. This research is another example of the need to provide culturally sensitive care to bereaved children and families.

Another qualitative study explored perceptions of bereaved individuals living in Honduras of circumstances surrounding the death of loved ones Semi-structured interviews were later translated and transcribed. Participants expressed both comforting and discomforting continuing bonds when remembering the deceased. Results confirm a need to learn more about coping strategies and support mechanisms health professionals can use or suggest when working with bereaved in various cultures. Pediatric palliative care nursing research has spearheaded innovative research methods to address research challenges.

For example, rigor of pediatric palliative care research is often challenged with small sample sizes, minimal sample diversity, and recruitment difficulties. Facebook ads have successfully recruited a variety of cohorts including populations of gays and lesbians, cigarette users, women with low income, college students, and adults who are depressed 28 - While most studies have targeted adult age groups, Facebook ads have been used to recruit teenage and young adult populations such as Australian ages 16—25 and Canadian ages 15—24 youth affected by violence 35 , To our knowledge, our pediatric palliative care nursing research studies are the first to have successfully used social media to recruit children receiving palliative care and their parent caregivers for research participation More work is needed to determine how social media can best be used in pediatric palliative care research and clinical practice to improve care to children living with life-threatening conditions.

Nursing researchers and clinicians are in ideal roles to lead out in innovative thinking and pioneering strategies to address unique challenges in pediatric palliative care.

International studies

Another priority area in pediatric palliative care where nurses can take the lead is related to communication. While essential to trusted relationships, effective communication among children with life-threatening conditions, parents, and the healthcare team often is poorly understood and executed. William Worden, M. Read more Read less. Review A case-based clinical handbook, [ Palliative Care for Infants, Children, and Adolescents] combines a pragmatic approach to symptom management with a humanitarian approach emphasizing more abstract issues such as psychological support for both patient and caregiver.

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Palliative Care for Infants, Children, and Adolescents : A Practical Handbook

Most helpful customer reviews on Amazon. December 24, - Published on Amazon. Verified Purchase. Nothing out of the ordinary to read. I think I would just use the internet for my information.

Claire Quinn, Lecturer, Programme Lead MSc/PGD Health Sciences, NUIG

March 29, - Published on Amazon. This is an excellent yet east to read text for those in need of comprehansive information about palliative care of infants and children. September 13, - Published on Amazon. Palliative Care for Infants, Children, and Adolescents: A Practical Handbook is a beautifully written, practical resource for any health-care professional who works with children and families. Rather than laying out only checklists and protocols, the authors focus on the process of decision-making and relationships formed with families.

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  8. This edited volume retains a strong and supportive voice throughout as it sensitively and directly addresses some of the most difficult situations that health-care-providers and families face. It weaves in not only specific suggestions for managing medically difficult and emotionally complex situations but also frameworks for understanding and more broadly applying these approaches.

    Don't wait until you are faced with a crisis to look at this book -- use it as a guide to think about end-of-life and chronic care for children long before conflict or crisis emerges. Go to Amazon. Discover the best of shopping and entertainment with Amazon Prime. Dispatched from the UK in 10 business days When will my order arrive? Home Contact us Help Free delivery worldwide. Free delivery worldwide. Bestselling Series. Harry Potter. Popular Features. New Releases. Description There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition.

    Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.